After I saw Michelle speak at the Animas Type 1 Update this year, I knew I had to connect with her.
She was able to articulate so much of what I couldn’t say about my emotional journey with type 1 diabetes. One of the best takeaways I had from that event was this short video she shared. If you haven’t watched it yet, please do.
Michelle has been kind enough to answer some of my most burning questions. Here is the first one!
What are the challenges specific to adults diagnosed with T1?
I think there are some very unique challenges. It seems to me that with adult Type 1’s, there is an increased risk of misdiagnosis. That being said, there is no doubt that T1’s of all ages are at risk of a missed diagnosis. I meet so many T1’s diagnosed as adults who were clearly more likely to have T1 than T2 based on age and risk factors, but are started on oral medications rather than insulin because they are labelled as T2. The LADA (latent autoimmune diabetes in adults) cases are even more likely to receive this treatment and are often told their blood sugars are not high enough to be T1. This is so frustrating because early intervention can really ease the physical and emotional suffering for people diagnosed with T1.
I think for a few different reasons these traumatic and dangerous diagnosis stories occur more to adult Type 1’s. For children diagnosed with diabetes, the alarms bells go off and they are usually treated with insulin right away once they are diagnosed. For those fortunate enough to have a children’s hospital, treatment is especially prompt and appropriate. Conversely, I have met young adults sent away from a physician with high blood sugars either on oral medication or simply given a referral to a diabetes clinic. This lack of proper medical attention adds to the confusion, isolation, and psychological trauma.
So many adult T1’s are starting their diabetes journey with a lot of grief and loss but without the right kind of support. They may be out of the family home but many have not yet established a family of their own. Young adults are trying to establish autonomy and independence and may see asking for family help as weak or childish.
They are expected from the beginning to manage their own diabetes but could often benefit from having supportive family or friends taught alongside them how to check their blood sugar or administer insulin.
Managing one’s diabetes is a huge burden to carry alone. When adults with T1 (who were diagnosed as children) describe their past experience in paediatric care, it is often with longing. They remember the way staff knew them and their families, the encouragement and the smiles. Adults could use all of this as well! We like smiles and bright colours and being seen as a whole person!
Look out for more Q&A with her in the future.
Thank you Michelle 🙂
Read more about her here.