The Type 1 Update at Mount Sinai on World Diabetes Day

How did you spend World Diabetes Day?

I know some of you in Toronto area had your butts glued to the theatre seats at Mount Sinai Hospital, listening to Sebastien Sasseville.

ICYMI: Sebastien ran ACROSS CANADA. He crossed his personal finish line in Vancouver on World Diabetes Day a year ago. Has it really been that long?

He was one of the highlights at this year’s Animas Type 1 Update.

I wasn’t there (announcement-I’m moving! Second obvious announcement- I am up to my eyeballs in things to-do to make this move as smooth as possible).

Luckily, I was able to grab some snapshots of what happened via Twitter and Facebook. This event is one of my favourites and I have been to it EVERY TIME since I’ve been diagnosed. I was bummed I couldn’t attend this year, but happy that I could have a look into the speeches via social media.

Here’s a graphic I made from Seb’s speech. Thank you Sandy for the awesome tweets!

Sebastien Sasseville Quote 2

 

Here are some of the tweets!

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This one from Animas gal Sandy Struss.

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Lorraine is an RDE, CDE. Every time I hear Lorraine speak, I learn something a bit mind-boggling about diabetes. Here’s what I learned earlier last year at the same event:

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Temperature?! Cooking method? I knew diabetes was complex but had no idea these things effect your bg’s.

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Another totally “What the what” situation for me? The CGM which I have named Lumiere (because he lights up at night, my life and satisfies my Beauty and the Beast love awwwww), has been a real eye-opener for me.

There were some foods I thought were working with my body smoothly and others I thought I needed to stay away from. Lumiere let me look into what was happening in between the two hours pre and post meal.

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Now back to #T1Update15. The 3 S’s. L-R: Animas Tough Mudder champion Sandy, Sebastien and Master of Ceremonies Shawn Shepheard. Captain Steven C. Steele was on board too to talk about his piloting career.

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Lastly, a confession.

It’s been very very difficult to keep up my diabetes blog, Instagram, Twitter and Facebook. I do my best, but I have started my own business now which eats up a lot of my time.

I’ve really been consumed with guilt over this, but today I declare after World Diabetes Day that I shouldn’t need to feel so badly.

I am living out my dreams as an entrepreneur and not letting diabetes stop me in any way. Not letting my seizures take away my push for gold. Refusing to let my hearing impairment stop me from enjoying social events.

It may not be displayed on social media but this, I realized, is the best example I can be to others living with type 1 diabetes.

I’m doing what I want, making dreams a reality, being focused on positive friends and family. This month and further on I refuse to put myself down because I am doing everything I ever wanted-with a little insulin on the side.

If you ever need a reminder of how to live well with diabetes, get out there and attend events like this one. Be informed. Be empowered. Most of all, appreciate the time we have on this earth.

Given recent world events I think it’s safe to say we are all being reminded that life is oh-so precious and we need to enjoy all the life that we have.

XO,

Jess

 

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Grief-stricken, heartbroken and lifted. The Animas type 1 update event.

I am going to make a plea to you now.

If you are reading this: feeling alone, overwhelmed, depressed and often angry about living with diabetes, I beg of you…

Find help.

Please find help in creating that circle of positive support, those to stand beside you through this journey.

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Event: Type 1 Update, Mount Sinai Hospital, Toronto, Ontario. April 11, 2015

During Michelle Sorensen’s talk at the Type 1 Update, she shared a short video that verbalized exactly what I wanted from my own dream team. This video confirmed to me why I have chosen the people I have at this stage in my life, and why others are no longer here.

It was powerful and here it is.

What did you think of the video? Were you at the event?

For me, this video made me tear up. I saw clearly why some of the people that used to be in my life are now gone. They weren’t bad. They weren’t unaccepting. They just couldn’t provide for me what I needed and you know what? Maybe the people that are now out of my life are grieving the loss of the previous me, the person I was before diagnosis (of diabetes, my neuro disorder, the list goes on). And that’s okay.

There’s no blame to be had.

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Now as I sit here writing this, I am so incredibly grateful for being able to listen to Michelle speak at the podium and say so many things that I just needed to hear outside of my own head.

Over the next while I will be blogging more on the Type 1 Update event, focusing in on different topics each time.

If you would like more info now, here is a roundup of all the tweets that day.

Lots of love,

Jess

The Type 1 Update is an Animas event. Animas Canada has kindly chosen to support me with the Dexcom CGM as I continue to train for triathlons, cycling and running events. I believe in full transparency and appreciate that Animas Canada does not review or approve my blog posts. Please read the full disclosure here

Type 1 update at Mount Sinai is back + it’s my 3rd time at the SAME d-event?! #t1update15

I love the internet and all, but let’s meet IRL (in real life)!

 

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I’ll be at the Animas Type 1 update at Mount Sinai Hospital, Toronto on Saturday April 11th.

As you can see in the above photo, the hash tag has been set (#t1update15), so get your Facebook, Twitter and Instagram game on.  Get ready for information and more importantly, inspiration.

This year will be my 3rd time attending the SAME event. You can read my blog on last year’s event here.

Plus, here’s my 2014 Type 1 update profile highlight. Guest speaker Terrence Teixeira: Canadian triathlete, adventure-seeker and all round type 1 super star. Read it here

It still shocks me how quickly time flies, and how much changes as the years go on.

I’m excited to see familiar faces but equally thrilled to hopefully meet new friends as well. If you see me (I’ll be the one snapping lots of photos), don’t hesitate to come say hello!

Details below. Don’t forget to RSVP by e-mailing rdales@its.jnj.com or call 905-464-4939.

Type 1 update poster

 

Animas Canada has kindly chosen to support me with the Dexcom CGM as I continue to train and advocate for active living with type 1 diabetes . I believe in full transparency and appreciate that Animas Canada does not review or approve my blog posts. They want me to share my honest experience with the device. All opinions and posts are purely my own. There is a permanent link on my page on this sponsorship which you can read here

Let’s get physical: working out with a CGM

IMG_8456-1I’m off the market.

Officially attached… at the abdomen?

2015 is going to be filled with lots of races but with the added bonus of a continuous glucose monitor.

I did a summary of the Dexcom after a week trial last year in April. Read it here. Now I’ve got one- and am ready to train this season.

Any workout tips for a newbie to the CGM world?

 

New year. New season. New CGM. Let’s get started.

Xo,

J

Animas Canada has decided to support me in my athletic journey with a CGM. 

I believe in full transparency so I’ve made a disclosures page on my site which clearly states this sponsorship.

 

 

 

What a difference a year makes: Connected in Motion’s Trampoline Dodgeball Tournament 2014

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Last year I showed up to Connected in Motion’s trampoline dodgeball tournament scared and alone.

It was my first active event with CIM and I was beyond nervous. You can read my blog on that day here.

This time around was so different. It was a chance to see my amazing friends, but it was also a reminder of what a difference a year makes.

So many CIM events in between and friendships made and grown. More acceptance. More empowerment. More strength. Without Connected in Motion, I really don’t know where I’d be in this journey. I cannot thank you guys enough-from the people who run the show to the volunteers and all its members.

Special thank you to Amy & Steph-dodgeball organizers 🙂

Here are the photos from this weekend’s tournament-another one in the books!

 

 

How I will choose an insulin pump

I don’t know anyone that uses an Accu-Chek pump. Online and in real life, there was no one to bounce ideas off of or get opinions from.

It would be easy to dismiss them but when I started out on this journey I made a promise to myself that I would sit down with every company, and so I did.

Currently there are four insulin pump players in Canada: Accu-Chek, Animas, Metronic and Omnipod.

Whether a pump company was first on the market, the fastest growing at the moment or the smallest in the game is irrelevant to me.

Pumps that are wireless, with remotes, colour screens, threshold suspend… they are all features that can make life easier but at the end of the day, to me, a pump is a pump. If it makes me healthier, I want it.

Talk to some and one company’s pump fails on them constantly. Talk to others and that same pump brand is simply amazing.

For me the factor that holds the most weight in choosing a pump company is not the technology, but the people.

People=customer service.

Are you engaged during our meeting or do your eyes keep wandering to your cell phone to check e-mails? How much time do you spend bashing the competition, and how does that balance out with tips or encouragement you’re providing me for where I am in my d-journey?

Did you follow through with not just an e-mail, but with relevant resources and connections? Are the words you type speaking to our meeting or is it a generic “thank you for your time” send-off?

These actions are what make impressions. And it speaks volumes to the kind of customer service a company will provide if you choose them.

I’m going to weigh out which features mean most to me, but also think heavily about the people.

Who will go the extra mile for me and who will go the extra mile for you?

© t1dactiveliving.com All rights reserved.

 

 

 

 

 

 

 

 

 

 

 

 

 

CGM ON. Day 1 of my Dexcom continuous glucose monitor trial

Sunday. At Starbucks. Jacked up on an iced coffee, I put on my first continuous glucose monitor.

Read my last post on CGM’s here.

Ready, set, watch bg’s

It takes two hours to get the Dexcom running and I can tell you it was a LONG wait.

After driving home, I paced, stared at the screen and ogled at this little device now sticking to my body.

 

The perfect distraction was all the messages I got on social media. Within minutes of posting about my Dexcom trial, one woman offered to mail me Skin Tac (she was in the UK!), and so many others gave great tips such as…

  • not to panic if I see the “???” sign on the Dexcom as it will usually correct itself and that it does not mean something is wrong
  • to stay calm and not stress about getting used to a new device
  • not getting discouraged with seeing the full bg picture during physical activity
  • eat realistically
  • being aware of sweat/water, tight vs. loose clothing and what kind of beating the device will take for various kinds of activity

FINALLY, it was time! Two back-to-back bg’s with my regular meter to calibrate and then poof. It was working.

 

Within the first 15 minutes of putting it on, I had a slight low. It was REALLY NEAT to see as I treated, what was happening with my bg’s. I spent a good chunk of the afternoon just marveling at it.

 

CGM’s are just amazing. I’m extremely thankful that I have access to this type of amazing technology, even if it’s just for a week. Some people will never get to use one or even have regular access to insulin for that matter.

I’m going to enjoy every moment of this.

Excited to document 7 days of CGM,

J

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Trying my first continuous glucose monitor (CGM) this weekend! Come to me Dexcom!

On Sunday I will be hooked up to my very first continuous glucose monitor (CGM), the Dexcom by Animas.

As the time winds down, I’m starting to get antsy. I just want it on me already! My one week trial has come at the perfect time. I’ll be heading into week 2 of my half-marathon training. Here’s what the week will look like running-wise:

 

It will be interesting to see my bg’s during my short and long runs. Will it help me prevent lows? How will it feel on? So many unknowns.

You better believe I’ll be putting it to the test for every activity I love.

And although I’ll still be testing with my meter, it will be nice to see my levels on a screen all the time, all day…

 If the word “Errday” puzzles you, click here

for a week! Full report later.

Happy weekend all,

Jessie

Terrence Teixeira: Canadian triathlete, adventure-seeker and all round type 1 super star

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Terrence’s adventures around the world. In no particular order. 

“Do you know Terrence Teixeira?”

I’ve had a handful of people ask me that question the past few months.

I understand why.

We both have a passion for fitness and were both diagnosed as adults within the last two years.

During the Animas Type 1 Diabetes Update at Mount Sinai Hospital this weekend, I finally met the double T (I just made that up. Do people already call him this? Verdict unknown on whether he will think that is funny or lame. Will update later.)

He was the last speaker of the day and had me in stitches.

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Terrence is one of those people that just make you feel happy. I didn’t spend much time chatting with him but I believe in that statement.

As he talked about his diagnosis, it became apparent that from the very start, he BELIEVED and knew diabetes wouldn’t stop him from anything he wanted to achieve.

He climbed Mount Kilimanjaro, the highest free standing mountain in the world in 2012. And what did he do when he got to the top? Snap a shot of his bg’s of course! This pic makes me happy.

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Terrence shared with the crowd many sentiments that I also believe. Living with type 1 diabetes gives you mental focus. It makes you a better athlete because you’re more aware of your body.

“Diabetes doesn’t prevent you from doing anything.”

Here are 5 things the triathlete, marathoner and all-round athlete shared:

Master the transition. For those who don’t know, a triathlon is a race where you 1. swim 2. bike 3. run. The transition in between these activities is considered the fourth sport.

Terrence says diabetes is a bit of the same as that triathlon transition or fourth sport. Managing your diabetes is what you are doing in between (testing your bg’s, giving insulin, making adjustments) but incredibly important for you to reach your goal.

Knowledge is power. “In a race you need to know all the twists and turns.” Terrence told us he went on a pump just three weeks ago and is learning this new way of delivering insulin.

Become educated. Life with diabetes can’t be perfect but he says we can arm ourselves with more information to help us navigate through the race.

Expect the unexpected. Strive for excellence. Change your attitude. It’s all about how you approach things.

Teamwork. Gather support from those around you. Like me, Terrence points to Connected in Motion as part of his support team. Ask questions from others and help each other.

Setting priorities. We all have the same 24 hours in a day. Set your own priorities. You choose what you want to do every day.

“Everyone has their own marathon to run.”

Thanks for sharing your story Terrence. Another example of a Canadian athlete smashing personal records and going for gold with type 1 diabetes.

Visit Terrence’s website here.

J